A few words of advise for constant/casual drinkers.

[Graham_A_M]

Even though Im perfectly healthy; I had a very serious Seizure yesterday, brought up by bad drinking habits.
Heres the story.
So. yesterday I agreed to meet my dad at a restaurant for some lunch, that was fine at all, but I dont remember anything past leaving my house, How I got there I have no idea as I dont remember that or any of the events following from here.He was following me partially on the road for a short distance, and he said it was like following a drunk... it was REALLY bad.

I was later told (once in the hospital) that once I arrived to meet him there, that this is what happened: upon getting to the restaurant I was didn't say a thing, just passed out in in a slumped over position, where as proceeded to bite a part of my tongue off. my dad noticed a stream of blood pouring from my month so was able to stop me before I uncontentiously bit the rest of my tongue off.
I started shaking convulsively and my few sentences were said very slowly, without making much sense.

Finally a waitress called the ambulance, which is what saved me. I still remember nothing until I was about half way over the Rocky View hospital. The paramedics couldn't get any accurate answer from what they were asking me, and told me I was in a seizure.
Probably the worst muscle spazmatic pain I've ever experienced is now coming into play and is unavoidable from my mid back. Just rolling over in bed is enough to make you scream at the top of your lungs, its horrible trust me. What caused this? Uncontrolled muscle movement/strain when your brain in was in seizure.

It took numerous IV's to get my body back to normal. I found this out later that if you drink fairly regularly that you're body gets used to that, so when you ween yourself off like I did, these seizures are a common result.

Coles notes are:
Do NOT drink a fair amount consistently,
Have long breaks of 1 week or more so your body doesn't get used to a consistent schedules.
For me it was a few beers a night since that helped me fall asleep like a lightbulb, but after doing that for yours then to stop is what just about killed me here.

If you're wanting to kick a booze habit, take 1mg of Lorazepam under your tongue 4-6 times a day and ween yourself off of it that way.

Its been 24 hours since all this happened and I'm still in very rough shape.

[tobypaddock]

holy crap, scary - glad to hear you're OK now tho

[JRSC00LUDE]

Graham, you're a good guy and I'm glad you're ok.

On the lighter side, you've convinced me to never stop drinking....

But in all seriousness, I'd look at second opinions to be sure as to the source of the seizure and take care of yourself till you get right. Sounds scary man. :thumbsdow

[kvg]

It is very unlikely that your regular drinking brought on a grand mal seizure unless you are a hard core drunk. Did you lose your license? Thank god your OK and didn't crash.

[G-ZUS]

Originally posted by kvg
It is very unlikely that your regular drinking brought on a grand mal seizure unless you are a hard core drunk. Did you lose your license? Thank god your OK and didn't crash.

Every body is different, we all react different. OP was withdrawing

[SJW]

I had a friend go through the same thing. Steady drinking then stop. He went through DT's bad. Hallucinating and everything.

[spike98]

Im sorry, i have a hard time believing that the booze was the cause. Im basing my opinion on many many experiences of alcoholism thought family and friends for the past two decades. So unless your a HUGE drunk (ie smashed every night) id get a second opinion.

[kvg]

Epilepsy is quiet common(2% of people have it) I have family and friends with epilepsy and it didn't show up until they were an adult. Be careful, because progressively became worse once it showed up.

[Benny]

Originally posted by Graham_A_M
If you're wanting to kick a booze habit, take 1mg of Lorazepam under your tongue 4-6 times a day and ween yourself off of it that way.

Eh, that's not really the preferred option as Lorazepam (aka Ativan) is pretty short acting. Diazepam (Valium) is the ticket for a smoother withdrawal.

Any hallucinations? Any body tremors before/after? Panic? Paranoia?


Originally posted by kvg
It is very unlikely that your regular drinking brought on a grand mal seizure unless you are a hard core drunk.

Unlikely, but totally possible. Booze withdrawal doesn't only happen to people who drink a 26er per night.

[Meback]

Dude, homeless guys get this all the time, it's called alcohol withdrwal seziures (not the exaxt medical term). LOL, but ur a damn alcky.

[corsvette]

Wishing you a speedy recovery! scary stuff indeed, i went through some rough times when i finally realized my drinking behaviour was no longer normal. I quit cold turkey and yeah...its rough times for sure, you don't realize how much your body reacts not getting alcohol when its so used to it. Get well soon!

[D. Dub]

Graham_A_M

Just spitballin here. Are you Asian? I know that some Asians can have more extreme reactions to alcohol -- maybe withdrawals might be a part of that :dunno:

[SJW]

He's not Asian.

[D. Dub]

Then it doesn't matter

[xxviet]

dude is ur tongue okay? :(

[89s1]

Originally posted by D. Dub
Graham_A_M

Just spitballin here. Are you Asian? I know that some Asians can have more extreme reactions to alcohol -- maybe withdrawals might be a part of that :dunno:


No he is not, I met him on a cruise/meet and he is a white dude.


Hope you feel 100% soon man, I hurt my back pretty bad a while back and I know at least partially what you're going through.

[OCDP]

Sorry this has happened to you, scary indeed

Can you elaborate a bit more though? What do you mean by drink a fair amount consistently?

Were you drinking every Single night on end?

I'm known to go through a couple cases a week... Now I'm paranoid!

[mazdavirgin]

That sucks man get better soon.

I'm going to go against all the alcohol withdrawal non believers and leave this for you all to read...



There is no way to predict how any individual will respond to quitting. If you plan to stop drinking and you have been drinking for years, or if you drink heavily when you do drink, or even if you drink moderately but frequently, you should consult a medical professional before going "cold turkey."

For more information about withdrawals, see Alcohol Withdrawal.

Withdrawal Symptoms:

Mild to moderate psychological symptoms:

* Feeling of jumpiness or nervousness
* Feeling of shakiness
* Anxiety
* Irritability or easily excited
* Emotional volatility, rapid emotional changes
* Depression
* Fatigue
* Difficulty with thinking clearly
* Bad dreams

Mild to moderate physical symptoms:

* Headache - general, pulsating
* Sweating, especially the palms of the hands or the face
* Nausea and Vomiting
* Loss of appetite
* Insomnia, sleeping difficulty
* Paleness
* Rapid heart rate (palpitations)
* Eyes, pupils different size (enlarged, dilated pupils)
* Skin, clammy
* Abnormal movements
* Tremor of the hands
* Involuntary, abnormal movements of the eyelids

Severe symptoms:

* A state of confusion and hallucinations (visual) -- known as delirium tremens
* Agitation
* Fever
* Convulsions
* "Black outs" -- when the person forgets what happened during the drinking episode

[legendboy]

Originally posted by Graham_A_M
If you're wanting to kick a booze habit, take 1mg of Lorazepam under your tongue 4-6 times a day and ween yourself off of it that way.

This sounds like a terrible idea to me. Might want to read up on how fast benzo's can form a habbit

Also, the withdrawl from benzo's is probably the worst out of any substance on this planet

Be careful!

[jdmXSI]

Shit now im paranoid too... I have no more than 2 drinks per night consistantly, usually red wine. But thats pretty scary stuff! I hope your ok!

[Kloubek]

Wow - crazy story Graham. I'm glad to hear you were treated before further damage occured.

I did notice some spelling/gramatical errors in your post - which I don't believe are normally as common for you. Dare I say you should be laying down getting rest instead of posting your experience quite yet?

[Benny]

Originally posted by legendboy
This sounds like a terrible idea to me. Might want to read up on how fast benzo's can form a habbit

Also, the withdrawl from benzo's is probably the worst out of any substance on this planet

Benzos are genuinely indicated for help with alcohol withdrawal symptoms. They are habit-forming with relative ease, but in most cases you will only be on a short prescription duration for that drug so it's harder to form a dependence in that time.

Benzos get a bad rep because people try and go cold turkey once they've formed a dependence on the drug. This results in a flare up of the same symptoms the person was taking the drug for in the first place, and then separate benzodiazepine withdrawal symptoms. It can be a real bitch too. If people were to talk to their doctor and go on a gradually declining weening dose when they stop taking the drug, most symptoms can be eliminated. People are lazy though and EVERYONE thinks they can just cold turkey a drug they know nothing about.

[Graham_A_M]

^ Your right, the nurses said to take it REALLY easy on the Benzoz... which I certainly will. I'm already slowing down my usage with them to start with. 1 every 8 hours how, then 2 every 12/ 1 every 24 hours after that.

Hey guys. Thanks a ton for the concern. Tongue is okay now, Im glad the waitress put a napkin in my mouth before I bit the chunk right off. Holy fuck, first time in my life I've ever not been in any control, meanwhile doing something so very self destructive.
:eek:


Some further notes,
-yeah alcohol was entirely to blame, just a few beers a night, *every* night caused this.
- Yes Im 100% white: half Polish/ half French
- Thankfully I still have my license and we arrived at the restaurant before anybody really noticed/ reported me (despite having an alcohol level of 0.0 at the time of the seizure).
Im still incredibly sore and feel like shit. Even getting a glass of water is quite a pain. Lifting anything is quite an impossibility.
It honestly feels like I shit got the living shit beaten out of me by JRSCOOLUDE and 5 of his friends. Just leaning forward in my computer chair is immensely painful. :(


Conclusion: as innocent as it may be to have a few beers a night, every night to try to sway the effects of sleep Apnea, don't ever do this, at least for more then a couple weeks at most. Its been 48 hours since this whole incident happened, and Im still in very very rough shape.

As much as i have love Beer, I probably wont ever have another one for many years until Im sure this wont happen ever again.... ever.
Not to sound like a wet blanket, but the closeness to death I came to over the last couple days (and pain yet to endure over the next few ones to come) Really doesn't make this worth while.

Wow... What I did during my seizure were quite small then what could have happened, since your brain simply isn't aware of whats happening to its body or anybody else around it.
:eek: :eek:
We'll I'm glad I'm alive to tell you guys without any real repercussions, rather then it be someone else. :dunno:

[kvg]

I'm glad your still OK I was wondering since you hadn't posted again.

[legendboy]

Also, if you have drinks when your on benzos expect a black out and bad things to follow lol

[sabad66]

Wow, didn't realize 3 beers/night can cause that kind of dependence/withdrawal. Have you tried smoking/vaping some weed instead? Will put you right to bed if that's what you were ultimately drinking for.

[legendboy]

Drinking a few drinks every day will not cause something like this unless you have some sort of pre existing condition that was triggered

The majority of people are ok with a few a day no problem

[95teetee]

Originally posted by mazdavirgin
That sucks man get better soon.

I'm going to go against all the alcohol withdrawal non believers and leave this for you all to read...

thanks- I always wondered what the DTs were...

[zipdoa]

Graham,

Very sorry to hear about what happened. Somehow I missed the thread but Rage filled me in last night. Wishing you a speedy recovery, it must be incredibly unnerving to have an experience like this. Hopefully you don't ever have to experience what appears to be a Grand Mal ever again.

Looking forward to jamming with you again! All the best buddy.

[arian_ma]

Just wondering, seriously, whether all of the errors in your post are a by-product of what happened or were you just typing on a phone or something?

Incorrect usage of words, spelling is off, random punctuation everywhere...just asking because you usually don't type like that.

[Idratherbsidewayz]

Brutal!

Glad to hear you're ok, man. Hope you get 100% soon.

Your initial post sure made me happy I'm a binge drinker...

[n1zm0]

^ what are the intervals of drinking to be considered binge drinking, everyone ive talked to about it seem to say 'everynight' or 'every weekend'

good that you're ok Graham, its crazy to think it suddenly would just overcome you especially while driving on the highway or something, fk that would be horrible

[zipdoa]

Did you see any Aura's BTW?

[Neil4Speed]

Hey Graham - Thanks for posting, glad to hear that you are going to be OK.

[Modelexis]

Originally posted by Graham_A_M
It honestly feels like I shit got the living shit beaten out of me by JRSCOOLUDE and 5 of his friends.

JRS doesn't have 5 friends.

:D

[Jlude]

Originally posted by Modelexis


JRS doesn't have 5 friends.

:D

:rofl:

[TorqueDog]

Holy fuck man, what can I say... glad to hear you're not dead? That's some pretty intense withdrawal.

[sputnik]

Have you considered that you may have a drinking problem?

A few beers every night isn't exactly what I would call "casual".

[turbotrip]

damn man that sucks, give me a call and we'll grab a beer when you get out...

[badatusrnames]

Originally posted by turbotrip
damn man that sucks, give me a call and we'll grab a beer when you get out...

:rofl: Haha, I hope that's a joke...

[Shax]

To all the people who are hating on him that same thing happened to my Old Man, who drank 2-3 beers a night after dinner. It wasn't quite as bad and he did it on the couch but it's very much real. Scared the shit out of me.

Yes some people will have NO problem with this and some people will. Everyone is different.

[JRSC00LUDE]

Originally posted by Modelexis


JRS doesn't have 5 friends.

:D

I do if I count your mom! :rofl:

[CMW403]

Wow, that is fucking scary. Get better Graham.

[ExtraSlow]

Get well soon buddy.

[Pinner]

Originally posted by sputnik
Have you considered that you may have a drinking problem?

A few beers every night isn't exactly what I would call "casual".

Piss off, that was uncalled for !

Thanks for your story Graham

[7thgenvic]

errrg...

I have gone through withdrawl a few times and my reaction is pretty much the same every time it happens. I don't drink during the week at all, yet when it comes to the weekend, I usually go pretty hard... Give or take 10-20 drinks a night and I get the same reaction each Sunday night. I wake up and feel light headed and confused. I usually have to just sit up and take hot baths and drink as much water as possible till I pass out and head back to work on Monday.

I had bad withdrawl this weekend and have decided to give up on drinking for a few months and keep it down to maybe one night a week if even that.

It's pretty scary when someone reads your experience.

[Graham_A_M]

^ wow... or even just go easier, 20 is a fair bit. :eek:

Originally posted by JRSC00LUDE


I do if I count your mom! :rofl:
Oh snap! :rofl:

Hey guys, again thanks a TON for the concern.

Just an update if anybody wanted one: Im on the mend. When a body goes into a full seizure, all the muscles go into a violent convulsion, so Im sorer then Richard Simmons after a blindfolded Calgary Stampeders party on Viagra, but Robaxicet is a pretty good friend as of lately.

:rofl: :rofl:
Its the back though thats just the worst. Fuck it hurts WOW.

I'll see you at the Ship & Anchor this weekend Turbotrip? lol




Oh and a word of advise from my doctor, take multivitamins, twice the recommended daily intake if you're planning on cutting out the alcohol.

[natejj]

I know you said you drank every night... are you talking like, for the last year? Last 5 years? How long?

[zipdoa]

Originally posted by natejj
I know you said you drank every night... are you talking like, for the last year? Last 5 years? How long?

This, and I'm really interested to see if you remember experiencing an Aura before the seizure.

http://upload.wikimedia.org/wikipedia/commons/thumb/b/b0/Migraine_aura.jpg/800px-Migraine_aura.jpg

XLJ00o-vmh0

[Graham_A_M]

Originally posted by natejj
I know you said you drank every night... are you talking like, for the last year? Last 5 years? How long? Because of the sleeping disorder; 4-5 years.

I don't remember an Aura, is that a common warning sign of an impending seizure?

[zipdoa]

Originally posted by Graham_A_M
Because of the sleeping disorder; 4-5 years.

I don't remember an Aura, is that a common warning sign of an impending seizure?

Very common. Check out wiki and do some research.

If you ever experience one (hopefully it never happens again!!) it can give you a short window of opportunity to put yourself in a safe place and call for help.

[creeper]

I would seek out an additional opinion from a medical professional. If you are just talking about 2 - 3 beers a night for a few years, that amount doesn't seem like complete overkill, and I would be surprised if that was the root cause of this episode.

Seek out more information for your own benefit.

[zipdoa]

Bump - Graham, what was the outcome of this? Did you end up abstaining for a period of time? Did you ever experience any further seizures?

[BavarianBeast]

Take benzo's to ween off alcohol...

Probably not the most sound advice considering benzos are a lot harder to kick than alcohol and are also much more addicting.

[R154]

I believe graham went on to be one of the most successful sommeliers of our generation, actually.

*Graham, I apologize for making this joke at your expense. I didnt mean to hit a nerve or disrespect your medical condition. I sincerely do hope you recover.

[BavarianBeast]

Damn. Didn't realize this thread was from '11.

[googe]

It blows my mind that anyone thinks several beers a night, every night, is a reasonable thing to do to begin with.

[rage2]

Originally posted by googe
It blows my mind that anyone thinks several beers a night, every night, is a reasonable thing to do to begin with.
It's pretty normal once you've built a tolerance. :rofl:

[ExtraSlow]

Originally posted by googe
It blows my mind that anyone thinks several beers a night, every night, is a reasonable thing to do to begin with.
So, in your opinion, how many drinks a week is "reasonable".
5? 10? 2?

[killramos]

today is an ironic day to be having this conversation :barf:

[syscal]

Originally posted by R154
I believe graham went on to be one of the most successful sommeliers of our generation, actually.

Lol, I was thinking the same thing, never seen someone shut down so quickly on here before.

[max_boost]

One of the more dramatic forum members. Hope you doing alright Grammar. :D

[roopi]

Originally posted by R154
I believe graham went on to be one of the most successful sommeliers of our generation, actually.

:rofl:

[ercchry]

Originally posted by googe
It blows my mind that anyone thinks several beers a night, every night, is a reasonable thing to do to begin with.

yeah, thats crazy... so many carbs. i personally like to switch up my casual drinking with some wine and spirits :rofl:

[sputnik]

edit - who bumped this old thread?

[roopi]

Originally posted by sputnik
edit - who bumped this old thread?

Go back one page and take a look. It would be the first post with the year 2015 in it.

[ExtraSlow]

Holy shit roopi, you cracked the code.

[zipdoa]

Originally posted by sputnik
edit - who bumped this old thread?

I did, and legitimately wanted to know what came of the situation. Clearly PM would've been a better decision.

[Graham_A_M]

Originally posted by zipdoa
Bump - Graham, what was the outcome of this? Did you end up abstaining for a period of time? Did you ever experience any further seizures?

No I have severe seizures quite often now, usually at least once a month, and I don't even drink much at all anymore, not for months at a time at least. Usually happen when I'm sleeping, typically between 12-4 am. Last time I blacked out a week ago and whacked my head hard going down on the concrete. Sure made a mess of the ole' forehead. Had to get rushed to the hospital on that one. :banghead:

Scary since I'm having more and more memory problems... I often don't remember things I've done just a couple days prior.

[killramos]

I take it this is past the alcohol "withdrawal" and more likely epilepsy then?

No way i would ever take another drink in my life if it was causing your symptoms?

[Graham_A_M]

They initially ruled out epilepsy, given the first tests they did along the same time as the MRI.

[jwslam]

Originally posted by Graham_A_M
I often don't remember things I've done just a couple days prior.
To be fair, I don't even remember what I had for lunch yesterday unless I think hard about it...
Glad I'm not a heavy drinker.

/InBeforeAsiansCan'tDrinkAnyways

[roopi]

Originally posted by Graham_A_M
They initially ruled out epilepsy, given the first tests they did along the same time as the MRI.

So are they still running tests? Have they prescribed anything?

[rage2]

Originally posted by Graham_A_M
They initially ruled out epilepsy, given the first tests they did along the same time as the MRI.
I'm surprised doctors just ruled it out. Problem with epilepsy is that there's no way to detect it, or what causes it. I know a couple of people that have 'em, and it's completely random. It's frustrating, because nobody can tell you when or if it'll happen again.

So I'm guessing they took away your driver's license then?

[killramos]

Originally posted by rage2

I'm surprised doctors just ruled it out. Problem with epilepsy is that there's no way to detect it, or what causes it. I know a couple of people that have 'em, and it's completely random. It's frustrating, because nobody can tell you when or if it'll happen again.



:werd:

Epilepsy is kindof the result of "we don't have another medically explainable reason for why you have seizures".

I'm surprised that you haven't been hospitalized in the interim if you are having regular grand mal seizures not controlled by medication. Doctors are often extremely worried about SUDEP until they can confirm your medication is working.

[zipdoa]

Originally posted by Graham_A_M


No I have severe seizures quite often now, usually at least once a month, and I don't even drink much at all anymore, not for months at a time at least. Usually happen when I'm sleeping, typically between 12-4 am. Last time I blacked out a week ago and whacked my head hard going down on the concrete. Sure made a mess of the ole' forehead. Had to get rushed to the hospital on that one. :banghead:

Scary since I'm having more and more memory problems... I often don't remember things I've done just a couple days prior.

I'm sorry to hear that. Must be extremely frustrating. Do you experience auras if they happen while you're awake?

[Graham_A_M]

^ no, never an aura, everything seems fine, no tell tale signs. I don't remember anything that happens before it or during. :dunno: everything feels fine leading up to it, normal convo's and everything apparently. I usually don't find out about them until after I wake up at least an hour or so later typically in the ER wing of a hospital.

Oddly enough all the neurologists concluded everything with my brain is fairly normal, especially with the MRI results, so not a single person has ever found a reason for these continual severe seizures. :(

Lol, not exactly fun trying to live a normal life...

To Rage & Roopi, no they prescribed Lorazepam, which has decreased the number of how often they happen, but nothing beyond that. I was warned about taking too high of a dose though as apparently it's highly addictive in large dosages


Originally posted by syscal


Lol, I was thinking the same thing, never seen someone shut down so quickly on here before. no I was pretty hurt by being made fun of endlessly by making a post that I really shouldn't have. I didn't really remember too much of my 1st year sommelier course (which is all I have), what i thought I knew and remembered, obviously was seriously wrong. I made a mistake, I get it. But even in this thread by that "R154", it still lives on.
One. fucking. post.
Like really? Being made fun of by the very people I respect on here, sure hurt.

:nut:

For the record I'm not a heavy drinker any more, I never really was, just a few sleemans before bed to wind down and that was that. For those thinking I'm Asian, no I'm as white as they come. :rofl:



HUGE thanks to those that wished me better health. Next time we go on a cruise or the like, lunch is on me. I really do appreciate the concern, that means the world to me. :)

[legendboy]

Reading thru this old post and re reading my replies make me want to facepalm myself. Sorry for sounding so "know it all", I may have been sauced making those replies :banghead:

[zipdoa]

Originally posted by Graham_A_M
^ no, never an aura, everything seems fine, no tell tale signs. I don't remember anything that happens before it or during. :dunno: everything feels fine leading up to it, normal convo's and everything apparently. I usually don't find out about them until after I wake up at least an hour or so later typically in the ER wing of a hospital.

Oddly enough all the neurologists concluded everything with my brain is fairly normal, especially with the MRI results, so not a single person has ever found a reason for these continual severe seizures. :(

Lol, not exactly fun trying to live a normal life...

To Rage & Roopi, no they prescribed Lorazepam, which has decreased the number of how often they happen, but nothing beyond that. I was warned about taking too high of a dose though as apparently it's highly addictive in large dosages

no I was pretty hurt by being made fun of endlessly by making a post that I really shouldn't have. I didn't really remember too much of my 1st year sommelier course (which is all I have), what i thought I knew and remembered, obviously was seriously wrong. I made a mistake, I get it. But even in this thread by that "R154", it still lives on.
One. fucking. post.
Like really? Being made fun of by the very people I respect on here, sure hurt.

:nut:

For the record I'm not a heavy drinker any more, I never really was, just a few sleemans before bed to wind down and that was that. For those thinking I'm Asian, no I'm as white as they come. :rofl:



HUGE thanks to those that wished me better health. Next time we go on a cruise or the like, lunch is on me. I really do appreciate the concern, that means the world to me. :)

Takes a small person to kick a man when he's down. That's really unfortunate that they occur so frequently. I guess you haven't had another one while driving yet?

[rx7_turbo2]

Originally posted by rage2

I'm surprised doctors just ruled it out. Problem with epilepsy is that there's no way to detect it, or what causes it. I know a couple of people that have 'em, and it's completely random. It's frustrating, because nobody can tell you when or if it'll happen again.

So I'm guessing they took away your driver's license then?

I agree, strange Dr's have ruled it out. I had my first seizure a couple years ago, in my 30's, no known history of them before that point. MRI, CT, EEG all fine. I was in Emerg when I had a big one, sitting in front of a Neuro who was taking notes. It's those notes that produced my diagnosis. I lost my license for 6 months and it's forced a bit of a career change.

I get an Aura though, copper taste in my mouth and I loose the ability to speak. I can hear and comprehend people speaking to me but am unable to respond, it's scary as fuck! Had major issues with a drug called Keppra, but been on Lamictal for over a year and so far so good.

Graham, if you have them in your sleep have you tried taking video of yourself while sleeping? Providing a doctor with the video may help in getting a diagnosis :dunno:

[jdmXSI]

Damn, I am sorry to hear that they are still happening... I do hope you find a way to lead a more stable life.

Silly question, have either of you tried taking medical MJ to reduce their seizures? I only ask because I remember reading about a young girl who was having 200 seizures a day and they dropped significantly. (obviously consult a physician first).

http://www.dailymail.co.uk/health/article-2391207/We-feed-daughter-CANNABIS-stop-having-thousands-seizures-week-Parents-say-toddler-say-walk-talk-time-thanks-treatment.html

[ercchry]

Yeah, CBDs have been the latest thing for seizures... problem is there isn't many strains that actually produce CBDs

[rx7_turbo2]

Originally posted by jdmXSI
Damn, I am sorry to hear that they are still happening... I do hope you find a way to lead a more stable life.

Silly question, have either of you tried taking medical MJ to reduce their seizures? I only ask because I remember reading about a young girl who was having 200 seizures a day and they dropped significantly.

http://www.dailymail.co.uk/health/article-2391207/We-feed-daughter-CANNABIS-stop-having-thousands-seizures-week-Parents-say-toddler-say-walk-talk-time-thanks-treatment.html

I haven't personally. After my diagnosis I understandably googled the shit out of the various treatments and read countless stories of people for whom Medicinal Marijuana was the only thing that provided a reasonable quality of life.

Mine seem to be relatively well controlled with my current medication, but I would never rule anything out. I'd absolutely try MM if my current meds became ineffective.

[Graham_A_M]

Originally posted by rx7_turbo2


I agree, strange Dr's have ruled it out. I had my first seizure a couple years ago, in my 30's, no known history of them before that point. MRI, CT, EEG all fine. I was in Emerg when I had a big one, sitting in front of a Neuro who was taking notes. It's those notes that produced my diagnosis. I lost my license for 6 months and it's forced a bit of a career change.

I get an Aura though, copper taste in my mouth and I loose the ability to speak. I can hear and comprehend people speaking to me but am unable to respond, it's scary as fuck! Had major issues with a drug called Keppra, but been on Lamictal for over a year and so far so good.

Graham, if you have them in your sleep have you tried taking video of yourself while sleeping? Providing a doctor with the video may help in getting a diagnosis :dunno:

Yeah we tried that, full neuro scan while sleeping at the rocky view and everything, nothing out of the ordinary. :nut: (must say it's a bit odd trying to fall asleep with 20 sensors stuck to your head lol)
They've never happened while driving, thank the good Lord. .. Shit that would be catastrophic if they do. So I always hand over the keys past 10 pm just in case.
Haven't smoked weed since I was 22, but it may be worth a shot. Thanks for the tip, I'll have to see if I can get a Prescription for it. :)

[bourge73]

^^ part out said weed or no or ?

[Graham_A_M]

I'll see how much I can sling 8 balls & baggies for lol

[R154]

*edit* I was being an asshole.

[ryder_23]

Originally posted by Graham_A_M


Yeah we tried that, full neuro scan while sleeping at the rocky view and everything, nothing out of the ordinary. :nut: (must say it's a bit odd trying to fall asleep with 20 sensors stuck to your head lol)
They've never happened while driving, thank the good Lord. .. Shit that would be catastrophic if they do. So I always hand over the keys past 10 pm just in case.
Haven't smoked weed since I was 22, but it may be worth a shot. Thanks for the tip, I'll have to see if I can get a Prescription for it. :) \\

Did they at least do the one where they make you kill your body and mind before? That was my second one. No sleep, fasting, barely any fluids for 24hrs, and you lay there for 3 hours. I went through all this in 2008. Still medicated. Showed up in my first eeg, second one on meds showed "signs" of improvement.

Plus side, once you get use to the meds, the dreams are awesome :thumbsdow

Just something you have to live with day to day. At first it bothered me but I got through it. Stay positive Graham only thing you can do. Brain is a foreign world even to neurologists.

[JustinL]

One easy thing to try is making sure you have enough riboflavin in your diet or try supplementing riboflavin (B2). I used to get migraines that went Aura-headache-vomit-sleep. A friend who was having bad weekly migraines told me that taking B2 pills completely stopped her migraines. There was anecdotal evidence for it working then and now there is double blind RCT evidence as well. I've been on it for over a year and only had 1 migraine and that was after I stopped taking it for a week. It's worth a shot, you'll pee orange, but there's not much risk in giving it a try. There is something called riboflavin responsive epilepsy.

Dr. Google-- out!

[Graham_A_M]

Originally posted by R154
*edit* I was being an asshole. so just a typical post from you?:rolleyes:

[legendboy]

something like clonazepam might be good as a preventative measure for you
not ideal for a long term treatment but the pro's might out weigh the cons in your case :dunno:

[rx7_turbo2]

I'm on Lamictal now.

I started on Keppra. It was really really bad for me. I gained a massive amount of weight, was angry all the time, constant muscle pain, couldn't sleep, oh and let's not forget the random thoughts of suicide. It was a seriously rough year. Was a 12 week process to titrate off it on to Lamictal.

Lamictal has been good, on it over a year now. I sleep like I'm dead, and the dreams are so vivid, which can be good or bad depending on the content of the dream. The strangest side affect though is that I get songs stuck in my head. I know everyone gets an "ear worm" but this is way beyond that. A song gets stuck in there and it plays on repeat without a break for two or three days, night and day. Dreams will have a soundtrack, it's fucking bizarre.