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nzwasp
09-09-2016, 07:42 AM
About a year ago I was diagnosed with some strange disease (only discovered in the last 15 years) and now I have to take a 20mg pill every day to stop having problems when I'm eating certain foods.

About a year ago I started having a sore toe randomly - I thought it was my shoes so got some orthotics, well that didn't help - it wasn't extremely sore and I never thought gout because I didn't think it ran in my family - ended up having an xray yesterday and I find out on monday, talked to my parents and turns out both of my male grandparents had gout and they both had it in their toes.

I have a friend with gout and he seems to think you can eat whatever you want as long as you take the pills everyday...

rage2
09-09-2016, 08:08 AM
Originally posted by nzwasp
I have a friend with gout and he seems to think you can eat whatever you want as long as you take the pills everyday...
This.

I had some huge gout attacks this year ever since I started working out again, gout runs in my family, and what do you know I inherited it. Now I'm on allopurinol daily.

Basically, normal person uric acid level is something like 120-240. If your body produces more uric acid or your kidneys can't flush it out fast enough, it'll be higher than normal. Eat a lot of foods that create uric acid, and it'll spike it up and you'll get an attack. Taking allopurinol lowers your normal within the 120-240 range so your diet doesn't change anything.

Fast weight loss will spike your levels as well (which is how I ended up with attacks after losing 25lbs in 2 months). Your tissues stores uric acid, when you lose weight, the concentration goes up, more acid goes into your blood, and attacks. Uric acid spikes from weight loss is typically short term until the concentration levels in your tissues stabilize after you stop losing weight.

The key to staying within 120-240 is to get on allopurinol and check your uric acid levels every 3-6 months. Some people need higher doses of allopurinol to get down to the 120-240 level. Standard doses for allopurinol is 200mg, some people (like my dad) needs 400mg to control uric acid levels. Once you're stable there, eat and do whatever the fuck you want, weight loss as much as you want, and it won't spike up enough for an attack.

There's a pretty decent book on the topic, including what drugs to take to manage attacks during the transition on allupurinol:

https://www.amazon.ca/Beating-Gout-Sufferers-Guide-Living/dp/0981662463

Unfortunately, I'm allergic to NSAID's, no Advil or Indomethacin. On Advil I get all rashy, and on Indo, my nervous system goes bonkers, and I get the most insane high ever, so it sucks that I have to use Colchicine for attacks. You have to be careful with Colchicine because you can only take so much per attack as high concentration becomes toxic and your body takes a long time to flush it out of your system, so for large # of attacks that's a bad idea. That and everyone gets the runs while taking Colchicine. These 2 reasons alone makes Indo the go to gout attack meds, as long as you're not allergic to it.

mr2mike
09-09-2016, 08:17 AM
+1 for gout.

Mine is managable though.
Stay hydrated and don't drink beer and I'm good.
Also stress seems to be a huge determinant for an attack. Last 3 attacks have been after high stress life events.

nzwasp
09-09-2016, 08:23 AM
My toe pain attacks don't last very long (but are very frequent) and are manageable I think unless I do something like kick a ball while I have toe pain then I get a very sharp pain for a while. It might not be gout but since it runs in my family and I have been eating alot of high carbs and sugar and high carb drinks for the last 8 years I wouldn't be surprised.

My toe is never so sore that I can't sleep for example - I always put this down as to why I wouldn't have it.


Originally posted by mr2mike
+1 for gout.

Mine is managable though.
Stay hydrated and don't drink beer and I'm good.
Also stress seems to be a huge determinant for an attack. Last 3 attacks have been after high stress life events.

Im allergic to barley - the main ingredient of beer so I cant drink it anyway, although due to the first problem I have I also am now finding I cant drink wine either.

Kloubek
09-09-2016, 08:31 AM
Originally posted by rage2
Fast weight loss will spike your levels as well (which is how I ended up with attacks after losing 25lbs in 2 months).

Firstly, congrats on the weight loss.

I get gout as well. I try to curb the red meat and alcohol, and it has helped some.

The very first attack I had, my foot turned purple and literally swelled up 25% bigger than normal. The pain was the most I have ever felt from any extremity, and I've broken bones, cut myself to the bone, etc. I had no choice but to work, and it took me 20 minutes to walk 100 meters from the parking lot. Gout sucks.

The attacks since have hurt like heck, but nothing like that first time. Over the past year or two, my attacks are far reduced in severity, but on the other hand my big toes tend to be mildly sore almost all the time these days... whereas before they were only sore during an attack.

I also have chronic fatigue/excessive daytime sleepiness, chronic mild to moderate back pain, painful stomach acid issues, and depression. (The latter of which is treated, but at the same time doesn't allow me to have any natural "highs". Basically, if it wasn't for my son, life for me would be virtually meaningless)

And I'm 41. Life expectancy for males in Alberta is 79.

I don't see myself making it there.

e31
09-09-2016, 09:12 AM
I have regular occurrences of night terrors. It begins with a cold sweat then progresses rapidly to manic kicking and screaming, followed up with symptoms of an actual fever.

The only cure i've found to this day... More Cowbell.

revelations
09-09-2016, 09:57 AM
Not really a "disease" but I go through phases of restless leg (calf) syndrome.

Magnesium, Calcium and Potassium work wonders though. Switching to tea from coffee, more exercise and stretches seem to help.

J.M.
09-09-2016, 10:13 AM
Gout runs in my family as well. My dad gets gout attacks in his feet and sometimes his knee. His brother gets them too. They both say it's brutal.

My dad took Indonethacin for years but eventually it stopped working for him and he's been on allopurinol since then.

mr2mike
09-09-2016, 10:15 AM
Originally posted by revelations
Not really a "disease" but I go through phases of restless leg (calf) syndrome.

Magnesium, Calcium and Potassium work wonders though. Switching to tea from coffee, more exercise and stretches seem to help.
I was going to say, Calcium and Magnesium for this.


For Gout for OP. Make sure your water intake is up. Sounds like you can keep it at bay which is good, but keep hydration up.

rage2
09-09-2016, 10:17 AM
Originally posted by J.M.
My Dad took Indonethacin for years but eventually it stopped working for him and he's been on allopurinol since then.
Yea, that book I posted talks about poor gout management, and it's the fault of doctors not knowing enough as to how to address it. Indo addresses the immediate symptoms, allopurinol fixes the core of the problem. Just taking Indo is a ridiculous way to treat gout.

C_Dave45
09-09-2016, 11:09 AM
Serious Crohns and Colitis in my immediate family.
Horrible disease. Affects our everyday life.

XylathaneGTR
09-09-2016, 11:21 AM
Mild-moderate Colitis here; under control with lots of remicade and methotrexate - haven't had a flareup in a few years and poopin' really nice. Hoping to try fecal transplants and shit once there's a bit more documented research and trialing behind it. For now, fingers crossed no cancer later, but that's future me's problem I suppose.

dj_rice
09-09-2016, 11:36 AM
I developed some weird ass condition 3 years ago lately where in the winter time, if my face or skin is exposed to the extreme cold for short times, literally I become Benajmin Button and my facial skin droops/develops these weird little bumps that looks like hives on my body and my face looks like I've aged to about 70. I don't believe its an allergic reaction as can one be allergic to the cold?

But when I'm all warmed up back to good temperature, my skin/face goes back to normal.

I cannot explain this and never went to the doctor either since I cannot replicate it on demand.

WTF did I develop???????????



As well, I have leg muscle spasms every 2-3 months in both legs (if it happens on one leg, a few days later it will occur in the opposite leg) on my hamstring muscle but they only happen in the middle of the night when I'm sleeping but man do they hurt. I scream like a lil bitch when they come on. Muscle gets rock hard, and spasms like a heart. I just grimace and let it run its course

G-ZUS
09-09-2016, 11:40 AM
Originally posted by dj_rice
I developed some weird ass condition 3 years ago lately where in the winter time, if my face or skin is exposed to the extreme cold for short times, literally I become Benajmin Button and my facial skin droops/develops these weird little bumps that looks like hives on my body and my face looks like I've aged to about 70. I don't believe its an allergic reaction as can one be allergic to the cold?

But when I'm all warmed up back to good temperature, my skin/face goes back to normal.

I cannot explain this and never went to the doctor either since I cannot replicate it on demand.

WTF did I develop???????????



AIDS

C_Dave45
09-09-2016, 11:49 AM
Originally posted by XylathaneGTR
Mild-moderate Colitis here; under control with lots of remicade and methotrexate - haven't had a flareup in a few years and poopin' really nice.
My son has a Remicade infusion every 2 months. Are you getting yours covered? His is through Blue Cross. Thank God too. $4,000 a pop!!

Matty_10
09-09-2016, 11:50 AM
GERD, IBS, cold urticaria (allergy to the cold), white tongue/foggy head/pressure bumps above ears back of neck.

GERD/IBS is a bullshit diagnosis, it's basically a specialists way of saying we have no idea what's wrong with you. Also looking at fecal transplant studies.

nzwasp
09-09-2016, 11:53 AM
Originally posted by Matty_10
GERD, IBS, cold urticaria (allergy to the cold), white tongue/foggy head/pressure bumps above ears back of neck.

GERD/IBS is a bullshit diagnosis, it's basically a specialists way of saying we have no idea what's wrong with you. Also looking at fecal transplant studies.

Yeah GERD is what my doctor originally thought and then I had a biopsy during endoscopy and I ended up with this:

https://en.wikipedia.org/wiki/Eosinophilic_esophagitis

nzwasp
09-09-2016, 11:54 AM
Originally posted by dj_rice
I developed some weird ass condition 3 years ago lately where in the winter time, if my face or skin is exposed to the extreme cold for short times, literally I become Benajmin Button and my facial skin droops/develops these weird little bumps that looks like hives on my body and my face looks like I've aged to about 70. I don't believe its an allergic reaction as can one be allergic to the cold?

But when I'm all warmed up back to good temperature, my skin/face goes back to normal.

I cannot explain this and never went to the doctor either since I cannot replicate it on demand.

WTF did I develop???????????


Matty_10 mentioned this cold urticaria (allergy to the cold) and it sounds exactly the same according to the wikipedia article on it.



As well, I have leg muscle spasms every 2-3 months in both legs (if it happens on one leg, a few days later it will occur in the opposite leg) on my hamstring muscle but they only happen in the middle of the night when I'm sleeping but man do they hurt. I scream like a lil bitch when they come on. Muscle gets rock hard, and spasms like a heart. I just grimace and let it run its course

Oh I get these as well feels like my muscle is being ripped open in the middle of the night. I never regarded it as much of a problem - it probably happens twice a year. I actually presumed that everyone got something like this.

bigbadboss101
09-09-2016, 12:03 PM
Originally posted by revelations
Not really a "disease" but I go through phases of restless leg (calf) syndrome.

Magnesium, Calcium and Potassium work wonders though. Switching to tea from coffee, more exercise and stretches seem to help.

I do a Magnesium Sodium Potassium combo.

dj_rice
09-09-2016, 01:02 PM
Originally posted by nzwasp


Matty_10 mentioned this cold urticaria (allergy to the cold) and it sounds exactly the same according to the wikipedia article on it.



Oh I get these as well feels like my muscle is being ripped open in the middle of the night. I never regarded it as much of a problem - it probably happens twice a year. I actually presumed that everyone got something like this.


WTF!! Thanks matty_10 for diagnosing me. That is exactly what it is.

killramos
09-09-2016, 01:07 PM
19 posts and there hasn't been a chlamydia joke yet?

What is beyond coming to...

jwslam
09-09-2016, 01:38 PM
Originally posted by killramos
19 posts and there hasn't been a chlamydia joke yet?

What is beyond coming to...
Guess those days are long gonorrhea

Lex350
09-09-2016, 01:50 PM
Gout runs in my family too. I've had it twice but luckily not really bad. I just modified my diet and it went away. Now....for all of you older farts like me go get your Shingles vaccine. That shit is nasty. I haven't had it but a good friend got it...really bad. It had him laid up for almost a year. After I saw what he went through I got that shot immediately.

ZenOps
09-09-2016, 03:02 PM
I got my first recurrence of Shingles.

No biggie, slight rash on one leg with some pinpricks - made for tough sleeping for a couple nights. Healing nicely now.

Some people have really nasty shingles, other people its only a slight annoyance. I'm glad it showed up again, as I hear that having it for a second or third time is extremely rare.

BTW: What I found strange that while it was almost entirely on one side of my body and on one leg, somehow one small infiltration of shingles managed to find itself to my mouth.

sneek
09-09-2016, 03:29 PM
Originally posted by ZenOps
I got my first recurrence of Shingles.

No biggie, slight rash on one leg with some pinpricks - made for tough sleeping for a couple nights. Healing nicely now.

Some people have really nasty shingles, other people its only a slight annoyance. I'm glad it showed up again, as I hear that having it for a second or third time is extremely rare.

That's awful. I got shingles when I an investment banking intern. I barely got any sleep as it was and shingles was making sleeping even harder. I did get vaccinated a year later but I am not sure if that protects in the future.

blownz
09-09-2016, 04:23 PM
I have this:

http://www.hemochromatosis.org/#overview

Average ferritin level (iron) in the blood is 50-150 and I was over 2500 when diagnosed.

Fairly easy to live with though. When I was first diagnosed I was at the hospital once a month for just under 2 years. Now I am down to every 2-3 months. And my blood gets put into rats/mice for testing. :thumbsup:

Only downside aside from the scaring on my arms from all the needles (I look like a drug addict) is some joint pain.

acedia
09-10-2016, 07:50 AM
Gout runs in my family too. No signs of it yet at 42, so maybe it'll pass me by. Maybe my lifestyle keeps it at bay.


Originally posted by Kloubek

I get gout as well. I try to curb the red meat and alcohol, and it has helped some.

No, guess I'm fu**ed. heh

raceman6135
09-10-2016, 09:40 PM
I had a bout of gout a year ago and was prescribed colchicine for 7 to 10 days which fixed me right up without any side effects.

Since then, I've been drinking pure black cherry juice every day as opposed to taking medicine, and have not had another run-in with gout, even though my diet has remained basically the same.

NOTE: the black cherry juice has to be 100 percent pure: no "cherry drink" or mixed fruit blends or "from concentrate" as it does not work nearly as effectively.

I also suffer from hypertension (high blood pressure) which runs in the family. Daily hydrochlorothiazide pills keep that under control.

Kloubek
09-10-2016, 09:59 PM
Never found cherry to help. Haven't really tried long term, mind you....

rage2
09-10-2016, 10:41 PM
Originally posted by raceman6135
I had a bout of gout a year ago and was prescribed colchicine for 7 to 10 days which fixed me right up without any side effects.

Since then, I've been drinking pure black cherry juice every day as opposed to taking medicine, and have not had another run-in with gout, even though my diet has remained basically the same.

NOTE: the black cherry juice has to be 100 percent pure: no "cherry drink" or mixed fruit blends or "from concentrate" as it does not work nearly as effectively.

I also suffer from hypertension (high blood pressure) which runs in the family. Daily hydrochlorothiazide pills keep that under control.
The problem with black cherry juice is that the effect doesn't lower uric acid, it provides anti inflammatory relief so you don't feel pain from inflammation. It's like popping an Advil a day. Uric acid crystals are still building up in your joints, damaging them every time there is movement. Wear down your joints enough and you end up with arthritis. Relieving pain isn't the proper way of treating gout. Addressing the core problem of uric acid levels and subsequent crystal build up is the only true cure.

While a "gout diet" does work in reducing uric acid levels, you're limiting yourself from a ridiculous amount of foods. This isn't even a complete list:

http://www.healthline.com/health/gout/diet-restrictions

It's all over the map based on purines, and it differs from one person to another how much each food spike uric acid levels. Some ppl might get a spike and attack from red wine, some might from steaks. You won't really know unless you measure your uric acid levels daily and that's just not feasible. But if you want to poke your fingers daily...

https://www.amazon.com/EasyTouch-Glucose-Cholesterol-Multi-Function-Monitoring/dp/B00BGBTDZK/ref=cm_cr_arp_d_product_top?ie=UTF8

ZenOps
09-19-2016, 02:40 PM
I think I'm going to try the one tablespoon of apple cider vinegar to half cup of water before going to bed idea.

Seems to cover both gallstones and gout, the two things that seem to plague my gene pool.

jacky4566
09-19-2016, 02:52 PM
rage i just looked at that list. Why is organ meats a no go? Would processed meat (McDicks) be ok? Just curious.

nzwasp
09-19-2016, 03:03 PM
Update: I don't have gout atleast not yet.

I have a bunion forming on my toe however my doctor knew this 3 years ago yet didn't tell me since it wasn't my question - fucking hate doctors that discover things during checkups but then tell you its all fine since its extra to what you were looking for in the first place.

Hey out mcnuggets are full processed breast meat we dont have any kidney/liver bits in there! (I want to believe)

rage2
09-19-2016, 03:31 PM
Originally posted by jacky4566
rage i just looked at that list. Why is organ meats a no go? Would processed meat (McDicks) be ok? Just curious.
High in purines, body creates uric acid when breaking down purines.

No clue about processed meats, too generic to cover everything to be able to tell what processed meats would be rich in purines.

You know beyonders are getting old when we're sitting around here chatting about fucking gout. :rofl:

phreezee
09-19-2016, 03:41 PM
Got gout for the first time this summer and had it 3 times since! Fucking hell! Was on crutches once and the other times limping around.
Started taking bromelain supplements for inflamation and drinking more water.

Doc said he didn't want to proscribe me any meds because I'd be dependant on them forever.

I need to find some kind of uric acid reducing supplement.

rage2
09-19-2016, 04:26 PM
Originally posted by phreezee
Got gout for the first time this summer and had it 3 times since! Fucking hell! Was on crutches once and the other times limping around.
Started taking bromelain supplements for inflamation and drinking more water.

Doc said he didn't want to proscribe me any meds because I'd be dependant on them forever.

I need to find some kind of uric acid reducing supplement.

Originally posted by rage2
Yea, that book I posted talks about poor gout management, and it's the fault of doctors not knowing enough as to how to address it. Indo addresses the immediate symptoms, allopurinol fixes the core of the problem. Just taking Indo is a ridiculous way to treat gout.
Find a new doctor. What he's saying is like telling a diabetic not to use insulin so that they're not dependent on it forever. :nut:

revelations
09-19-2016, 05:04 PM
^ I would suggest that their doc is probably advocating lifestyle change first, like for T II diabetes - instead of jumping into pills immediately.

rage2
09-19-2016, 05:56 PM
He's had 3 attacks since the summer. That's serious enough that a diet change alone won't be able to lower levels enough to stop attacka from happening.

speedog
09-19-2016, 06:25 PM
I would call myself disease/condition free, had a case of shingles probably a decade ago - stress related and dangerous because is was with a centimetre of both of my eyes. Treated it, addressed stressors and no issues since.

For those with gout, how much of it was diet induced - alcohol, seafood, certain meats seem to possibly be contributing factors.

codetrap
09-19-2016, 07:14 PM
.

DT_music
09-19-2016, 07:53 PM
Type 1 diabetes, diagnosed 5 months ago at age 31.

rage2
09-19-2016, 08:08 PM
Originally posted by speedog
For those with gout, how much of it was diet induced - alcohol, seafood, certain meats seem to possibly be contributing factors.
My diet was much more extreme 6 years ago. Steaks nightly, 10-30 drinks a night, never had a single attack. Nowadays I have steak maybe once a month, only drink once or twice a month (no more than 5 or 6 drinks) and I've had 4 attacks in the last 3 years. Diet definitely wasn't the reason for my attacks.

My doctor and various books have a normal average uric acid level of 120-240. Diet will affect the average by 100 or so which means if you're on the high side of the normal average you would be susceptible to attacks if you binge on beer and steaks. I was at 560 back in April so even if I went with a strict low purine diet I would still be susceptible to attacks.

danno
09-19-2016, 08:13 PM
Chronic migraines, happens over the winter time mostly with chinooks. Worst situation I had 21 or so migraines in a month. I get the aura vision for 45 min then a hard headache for 3 hours, it tapers off to a light headache for the rest of the day with a upset stomach and stiff neck. Only solutions I have are shower, sleep or taking a nice dump have some relief.

Now I don't want to jinx it but they have almost disappeared this year. Typically I get 1 every 2 weeks. I tend to get them 2 days before the Chinook then a day after. I also find if light shines in my eyes sometimes that triggers them too. Been dealing with them since I was in junior high.

phreezee
09-19-2016, 09:01 PM
Originally posted by rage2


[snip] Indo addresses the immediate symptoms, allopurinol fixes the core of the problem. Just taking Indo is a ridiculous way to treat gout.

Find a new doctor. What he's saying is like telling a diabetic not to use insulin so that they're not dependent on it forever. :nut:

Indomethacin is exactly what he prescribed me. I was almost in tears from pain the other night due to gout in the heel, but popped two indos to make it through the night. I don't even drink, but I had pho twice that week and sure enough 2-3 days later.

When I got my first blood test to diagnose, I had a uric acid level of 400-500. Looks like I need a prescription for allopurinol, thanks!

XylathaneGTR
09-19-2016, 09:10 PM
Originally posted by C_Dave45

My son has a Remicade infusion every 2 months. Are you getting yours covered? His is through Blue Cross. Thank God too. $4,000 a pop!! Yup...glad I opted for the "enchanced" drug coverage at work. 700mg at around $900/100g last time I looked into it every two months.

raceman6135
09-19-2016, 11:10 PM
Originally posted by rage2


My doctor and various books have a normal average uric acid level of 120-240.


Originally posted by phreezee


I had a uric acid level of 400-500.

I don't think Rage2 is talking about the same tests/results as phreezee and me.

For adult males (age 18 and older) in Canada, most laboratories measure in µmol/L with an acceptable level of 210-490.

SOURCE: Link 1 (http://www.calgarylabservices.com/lab-services-guide/lab-tests/AlphabeticalListing/U/Urate-Blood.htm)

Or Link 2 (http://www.calgarylabservices.com/lab-services-guide/lab-tests/AlphabeticalListing/U/Urate-Blood.htm)

FYI, when I had my bout with gout, my level was 503.

Here's the research my doctor shared with me re: cherries may reduce uric acid levels, from the Boston University Medical Center, published in the Arthritis and Rheumatology Journal of the American College of Rheumatology: http://onlinelibrary.wiley.com/doi/10.1002/art.34677/full

I won't claim that everyone will get the same results as the ones I got from drinking cherry juice and not taking meds; all I know is that my levels have fallen to 385-ish taking cherry juice and changing very little else in my diet (I know, I should be having less red meat and more veggies. It's getting better now that my girlfriend and I eat more meals together.)

rage2
09-19-2016, 11:56 PM
I'm talking about the same thing. Here's a page from the book I mentioned earlier in the thread explaining the high levels from your links.

http://i.imgur.com/TWOUYsv.jpg

My doctor has it at 120-240 for a healthy gout free lifestyle, this book references studies that says 360 is the upper limit, Brits recommend under 278, and if you have gout tophi, under 222.

nzwasp
09-20-2016, 08:24 AM
Originally posted by danno
Chronic migraines, happens over the winter time mostly with chinooks. Worst situation I had 21 or so migraines in a month. I get the aura vision for 45 min then a hard headache for 3 hours, it tapers off to a light headache for the rest of the day with a upset stomach and stiff neck. Only solutions I have are shower, sleep or taking a nice dump have some relief.

Now I don't want to jinx it but they have almost disappeared this year. Typically I get 1 every 2 weeks. I tend to get them 2 days before the Chinook then a day after. I also find if light shines in my eyes sometimes that triggers them too. Been dealing with them since I was in junior high.

If i was getting migranes like this everytime there was a chinnook i sure as hell would move from Calgary, although I understand not everyone can. I have a buddy who lives in Edmonton and gets these migraines so bad he cant even work when he has them. I also have a friend here who is a doctor and shes on serious pain meds most of the time in order to stop the pain from the migraines.

phreezee
09-20-2016, 08:38 AM
Originally posted by raceman6135


all I know is that my levels have fallen to 385-ish taking cherry juice and changing very little else in my diet

Have you tried cherry extract? Cherry juice everyday can't be cheap.
I bought a bottle of this to try : https://www.amazon.ca/Natural-Factors-Cherry-Rich-Extract/dp/B007NS70L4/ref=sr_1_1?ie=UTF8&qid=1474382305&sr=8-1&keywords=cherry+extract

My doctor also said 100-200 is what I should aim for, so I'm also going to get a prescription for allopurinol.

JustinL
09-20-2016, 08:48 AM
Originally posted by danno
Chronic migraines, happens over the winter time mostly with chinooks. Worst situation I had 21 or so migraines in a month. I get the aura vision for 45 min then a hard headache for 3 hours, it tapers off to a light headache for the rest of the day with a upset stomach and stiff neck. Only solutions I have are shower, sleep or taking a nice dump have some relief.

I get migraines too. They suck. My symptoms are very similar to yours with the aura for 20 minutes, 20 minutes of golden time when I can get to a bed, then the whopper head ache that only goes away with a puke and a sleep for a couple hours. For the next couple days I get a pinching headache if I move too fast and I feel like I've got a case of the stupids.

The good news is though that I've found taking riboflavin (Vitamin B2) has worked to reduce them to maybe one per year. There is medical evidence that B2 actually works and it's just a cheap vitamin so it's worth giving it a shot for a few months and see if you can reduce the frequency.

danno
09-20-2016, 11:10 AM
I'll actually look into. I'm on a hot streak right now I havnt had one in a while. I have the same thing after my 45 min aura I have 20-30 min of time to get where I got to go before the pain starts. I use to puke but I don't typically anymore, if I take pills of any kind I will puke so I just deal with it. I almost always go home from work as we have sick time and I get paid anyway. Not a lot of people understand the pain through the whole body these headaches can do. I also get very forgetful when I have them. I might be at the age where they start to disappear, I'm 33 now.

danno
09-20-2016, 11:20 AM
I just remembered my wife told me to take b12 and I do, almost everyday I drink a sugar free rockstar 600% of my daily b12. Guess I don't need the pills. Haha
Ya it's a bad habit drinking that but I don't drink coffee and I like them. Maybe that's part of my decline in migraines over the last year

danno
09-20-2016, 11:30 AM
I just remembered my wife told me to take b12 and I do, almost everyday I drink a sugar free rockstar 600% of my daily b12. Guess I don't need the pills. Haha
Ya it's a bad habit drinking that but I don't drink coffee and I like them. Maybe that's part of my decline in migraines over the last year

spikerS
09-20-2016, 11:48 AM
Nothing serious but i have rosacea. Makes my nose break out with acne, and turn red with purple tinges at times. Really suseptable to sun burns which can cause blistering if I am not careful.

I have tried damn near every acne treatment I can find, even medical grade stuff and it doesn't seem to work. I have had about a 50/50 success rate with antibiotics prescribed by the doctor.

Really I am tired of people seeing my nose during an outbreak and thinking I am drunk when I barely drink...I would love to find a way to control it, or find some medication. Drives me nuts.

JustinL
09-20-2016, 11:56 AM
Originally posted by danno
I just remembered my wife told me to take b12 and I do, almost everyday I drink a sugar free rockstar 600% of my daily b12. Guess I don't need the pills. Haha
Ya it's a bad habit drinking that but I don't drink coffee and I like them. Maybe that's part of my decline in migraines over the last year

B2 is the one you are looking for not B12. There is only 1.2mg of B2 in Rockstar, and they say that you need 250-500 to help with migraines. It's worth a shot, only downside is that it turns your pee bright yellow.

http://www.migrainedisorders.org/treatments/preventative-migraine-treatments/

danno
09-20-2016, 12:08 PM
Oh I'm that case I will look into. Thanks

Dumbass17
09-20-2016, 12:27 PM
Wow, I feel bad for everyone with these issues. Good luck with all either overcoming or at least managing your symptoms!

klumsy_tumbler
09-20-2016, 12:28 PM
I'm also a sufferer of chronic migraines. Mostly brought on by weather or stress. I ended up downloading an app to identify triggers and frequency, which I'm hoping will start to show some trends soon so that I can manage this better. I will be looking into Vitamin B2 asap!

One of the worst parts of the migraine is what I call the "headache hangover"... the hour(s) spent in a fog/daze afterwards where you feel like a completely useless person that can't do anything, and you're still sensitive to noise and light (although the headache pain has disappeared). Anyone else get that?:

JustinL
09-20-2016, 01:04 PM
Originally posted by klumsy_tumbler

One of the worst parts of the migraine is what I call the "headache hangover"... the hour(s) spent in a fog/daze afterwards where you feel like a completely useless person that can't do anything, and you're still sensitive to noise and light (although the headache pain has disappeared). Anyone else get that?:

Yeah, that's what I call having a case of the stupids. I just don't feel sharp for a day or so.

P_D
09-21-2016, 01:16 PM
Originally posted by JustinL


B2 is the one you are looking for not B12. There is only 1.2mg of B2 in Rockstar, and they say that you need 250-500 to help with migraines. It's worth a shot, only downside is that it turns your pee bright yellow.

http://www.migrainedisorders.org/treatments/preventative-migraine-treatments/

Going to buy some B2 this evening. I get migraines however i usually wake up with mine and rarely ever get them when i'm awake. I find a cocktail of Advil, T3, Alive and Robax and then sleep usually kills it off. I have had a couple of migraines last a day or 2 and then just hit up the medicenter for an Axert. Mine tend to be brought on by weather changes as well.

raceman6135
09-21-2016, 04:14 PM
Originally posted by rage2
I'm talking about the same thing. Here's a page from the book I mentioned earlier in the thread explaining the high levels from your links.

http://i.imgur.com/TWOUYsv.jpg

My doctor has it at 120-240 for a healthy gout free lifestyle, this book references studies that says 360 is the upper limit, Brits recommend under 278, and if you have gout tophi, under 222.

Interesting. Thanks for pulling the page for me. I obviously did not take the time to read the entire study. Here's hoping whatever our levels are at, none of us have any other gout attacks!


Originally posted by phreezee
Have you tried cherry extract? Cherry juice everyday can't be cheap.
I bought a bottle of this to try : https://www.amazon.ca/Natural-Facto...=cherry+extract

My doctor also said 100-200 is what I should aim for, so I'm also going to get a prescription for allopurinol.


I haven't tried the extract in capsules. I buy the juice at London Drugs when they have it on sale (as it is right now) for $5.49 per 946 mL jar. A cup per day is 236 mL, so each jar is 4 servings. I've seen references where as little as one-half cup (118 mL) per day is all that is needed, so if that is followed, you could get 8 day's worth for $5.49, which is about 69 cents per day.

The capsules would be cheaper, though, at about 47 cents per day at their 2 capsule per day recommended dose.

A difference of 22 cents per day equals $6.60 per month (30 days), or the price of one moderately expensive coffee or a cheap meal. I'm no Beyond baller, but six bucks won't break me :thumbsup:

No one has to be specific, but how much is a prescription for allopurinol? I do not have any prescription insurance/coverage at all (self-employed at the moment) so all drugs have to be paid out of pocket.

I'm trying to make exercise and diet changes to reduce the number of medications I take per day. I currently treat high blood pressure and high cholesterol with meds (which I'd like to get off) as well as taking warfarin (for life) because of an unprovoked pulmonary embolism.