Disoblige
10-05-2020, 12:17 PM
I stumbled upon this article again after seeing a recent newborn with a inherited condition, and it made it wonder...
New mom Suzanne Lamb is trying to cope as best she can with her newborn son’s skin condition.
“If you pick him up underneath the armpits, he blisters instantly,” she told Global News.
Elias is 11 days old and was born with the rare genetic disorder called epidermolysis bullosa. It’s often referred to as “butterfly skin” because the skin is as fragile and delicate as the wings of a butterfly.
Elias’ skin is so sensitive it could tear like tissue paper with the slightest friction.
It was something they braced for. Elias’ father was also born with the condition and there was a 50 per cent chance his children would inherit it.
“When I was born I had very little skin from the wrist up,” Taylor said. “My dad used the term, ‘It looked like a piece of raw meat,’ and I was in the NICU for two months.”
The family has shared photos of what’s underneath Elias’ bandages online. The images are tough to look at, but the family doesn’t want to filter the difficult truth.
“It’s one thing hearing about it, but it’s a completely other thing to see an infant go through it,” Lamb said.
https://globalnews.ca/news/4275219/butterfly-baby-calgary-parents-epidermolysis-bullosa/
Hate to see the suffering of the newborn, it's quite frustrating actually. If you KNEW that there was a 50% risk of this happening, why even consider having kids? I know I wouldn't want to risk giving my child a life of suffering with this condition.
They also have a GoFundMe page set up for their expenses, but I'm having a lot of trouble feeling sorry for them. I feel really bad for the kid though, for their parents being idiots.
I've seen a few examples of parents having some really life altering conditions that are hereditary and they still decide to have biological children. It boggles my mind. Adopt or something, come on.
Thoughts?
New mom Suzanne Lamb is trying to cope as best she can with her newborn son’s skin condition.
“If you pick him up underneath the armpits, he blisters instantly,” she told Global News.
Elias is 11 days old and was born with the rare genetic disorder called epidermolysis bullosa. It’s often referred to as “butterfly skin” because the skin is as fragile and delicate as the wings of a butterfly.
Elias’ skin is so sensitive it could tear like tissue paper with the slightest friction.
It was something they braced for. Elias’ father was also born with the condition and there was a 50 per cent chance his children would inherit it.
“When I was born I had very little skin from the wrist up,” Taylor said. “My dad used the term, ‘It looked like a piece of raw meat,’ and I was in the NICU for two months.”
The family has shared photos of what’s underneath Elias’ bandages online. The images are tough to look at, but the family doesn’t want to filter the difficult truth.
“It’s one thing hearing about it, but it’s a completely other thing to see an infant go through it,” Lamb said.
https://globalnews.ca/news/4275219/butterfly-baby-calgary-parents-epidermolysis-bullosa/
Hate to see the suffering of the newborn, it's quite frustrating actually. If you KNEW that there was a 50% risk of this happening, why even consider having kids? I know I wouldn't want to risk giving my child a life of suffering with this condition.
They also have a GoFundMe page set up for their expenses, but I'm having a lot of trouble feeling sorry for them. I feel really bad for the kid though, for their parents being idiots.
I've seen a few examples of parents having some really life altering conditions that are hereditary and they still decide to have biological children. It boggles my mind. Adopt or something, come on.
Thoughts?